Test #7 – Better but not quite clear

Test_2_15On Wednesday Catherine and I made the drive to Portland so that I could do a SIBO test at the NCNM Clinic on Thursday and not have to wait 2-4 weeks to get the results back.  I went into it feeling that my numbers were going to be down but not quite all the way down since I was still having symptoms off and on over the last month.   Not many though, I only reported symptoms on 8 days in 30 which is a record for me over the past year.

The test was later than I usually do it so I packed along a lunch knowing I’d be about 18 hours w/o food by the time I finished.  I sat in the lab area for the test along with one other woman and got to chat with the lab techs and Dr. Keller who I got to meet in person for the first time.   After my 3 hour test I chowed down lunch while the results were getting finalized and put into the report.   Well, turns out I was right, numbers down significantly but I still have SIBO.  The test was another technically “negative” test according to the machine output but Drs. Siebecker and Pimentel have changed the positive criteria to be any methane >=3ppm so I’m well above that.  Still, I dropped from a high of 33 methane, 9 hydrogen and combined high of 42 to a high of 13 methane, 14 hydrogen with a combined high of 24.  That is a good reduction in methane of 30 ppm and the increase in hydrogen is expected as the levels of methane go down.   This is really the best result I’ve had in that there is only one real spike in the graph, it is lower down, and the hydrogen is starting to show up finally since I was usually a high of 2-3 on hydrogen.

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Yet another round of treatment done

Today I am finishing up my 5th major round of herbal antibiotics since starting them in June of last year.  I did start out slow by ramping up in June so really didn’t hit full strength until July so that means I’ve been taking pretty heavy doses of herbals for seven months with maybe a 4-6 weeks off of them at times while testing and waiting for results.  It has been a very up and down and back up seven months.  My numbers were high in May, high in June, weird in July, very low in September after Round 3, up again in November after my 4th and what I hoped was my knock-out round and since then I’ve been very strict with diet and we’ll see what it gets me.   I head to Portland this week to do the test in person at the SIBO Center so I don’t have to wait 2-4 weeks for the results to come back.

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Sleep Hacking

sleepMy sleep has never been good for as long as I can remember.  Three years ago I was prescribed Ativan to deal with my bouts of insomnia, that was a disaster.  Yes, it put me to sleep but I very quickly became addicted to it over the course of a few weeks of travel and had to go through a period of weird symptoms that turned out to be withdrawal.  Luckily an urgent care doctor figured it out, my MD was prescribing more Ativan thinking that I was just dealing with anxiety.   I had to go through a gradual two month withdrawal process to safely get off the stuff.  After that I actually slept pretty well for the first time in years.

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B.hominis – to treat or not?

Four_common_forms_of_Blastocystis_hominis_ValznI really tried to use the Purge the Whorl to help clear my b.hominis parasite while doing my current SIBO herbals but it just was not meant to be.  The first time I tried I got sick off 1t. and the nausea lasted about 2 days.  I waited a week and tried again but decided to slowly ramp up from 1/2t. 1x a day up to 1t./3x day over the course of about a week.  I lasted 3 days on the full dose and then got really sick from it.  The stuff is vile to say the least, it deserves the Mr. Yuck sticker on the bottle.  It was never easy to choke down and then just made my stomach very upset.

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Diets, diets, diets…

dietOver the last year I have been experimenting with several diets to help deal with SIBO – the Specific Carbohydrate Diet (SCD), the Low FODMAP diet, the Paleo diet and the Paleo Autoimmune Protocol (AIP).   I have also recently been working on the SIBO Food Guide app and I got to do a lot of research into all of these crazy diets. The app gives the legal/illegal status for each of these diets along with FODMAP ranking of foods with serving sizes where appropriate.  The app should be available by the end of the month.

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New protocol for next few months

Would you want to take this for three months?

Would you want to take this for three months?

After that last somewhat disappointing test I did some research of what to do next and consulted with both Dr. Bowen and Dr. Keller about the plan moving forward.  First off, no more weed.  Probably a good thing in the short and long term and while my sleep isn’t perfect I am getting about 8 hours a night now at least even if it takes me 9-9.5 hours in bed to get that.  I’m definitely having very wild LDN induced dreams and I’m still waking up and often having to read a bit or listen to an audio book in order to get back to sleep but I do go back to sleep and sleep in a bit more every day.

 

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Looking back at the cause of my SIBO

SIBO-causesOriginally I blamed this whole nasty illness on a single round of Doxycycline in the fall of 2013. That was the one incident that I could point to when I suddenly started having some serious digestion issues but now a year plus later and a lot of learning I think I can say that the Doxy may have been the straw that broke the camels back but wasn’t necessarily the whole story.   I had started having issues with dairy by the summer of 2011 and at that point switched out milk in my lattes for almond or hemp milk so something was definitely not right almost 4 years ago.  I’d occasionally eat pizza or ice cream (or both in the same night) and pay for it for a few days.  I had an incident of what we thought was gallbladder problems back in 2010 after a trip to South Carolina where I ate a bit too much fatty foods so maybe this started almost 5 year ago.  So, while my digestion was usually pretty good these were signs that something was up starting in 2010.   I can point to a few things now that probably contributed to the SIBO, the parasite and the leaky gut that really caused all this to ballon out of control and impact my entire body.

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Weed and SIBO do not mix

10003531_861743397198994_1967015698776542821_nLooking back at this last year I almost had eradicated SIBO  twice.  I had two technically negative tests, one in March and one in September.   Each time I relapsed a few months afterwards, this last one even while I was still taking herbal antibiotics for 40 days.   I was trying to figure out what these two periods had in common and it finally hit me – herb, and not the antibiotic herbs.   In March I was unable to sleep from so much gut pain that I started using medical marijuana to put me out, it worked and I got the rest I needed.  After a few months I stopped but my SIBO was back.   In September I increased my dose of low dose naltrexone to 4.5mg and was waking up wide awake at 2:00 am every night so I got back on the herb usually vaping a few hits in the middle of the night and going back to sleep.  Again, I relapsed within a few months.

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Yet another relapse

Harris_Tim_SIBO_11.14.14I thought for sure that the last 40 days of herbal antibiotics was going to knock out the SIBO once and for all.  Instead SIBO regained some strength and managed to fight back pretty hard and throw a few good punches.   Things aren’t as bad as they have been but they sure aren’t as good as my September test and are much closer to the worst test in July than the September test.   I went from a high of 10 at 120 minutes to a high of 42 at 120 minutes and now I not only have methane showing but also hydrogen showing.  My hydrogen has never been above 2 before and now it is peaking at 9.  My methane was down to a high of 8 from a peak of 42 and now it is back up to 33.   Very frustrating to say the least.

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Shocking news for my feet, SIBO update

FullSizeRenderI decided to try and do something, anything, to get my feet back from being numb and painful due to the neuropathy I’ve been dealing with.   We never did figure out the cause of this but it is most likely either antibiotic toxicity or the methane producing bugs from SIBO.   I  visited a doctor in town who recommended an electro-stim until called The ReBuilder to fix neuropathy so I decided to just buy one instead of having to go in for regular treatments with it.   Now every morning and evening I sit for 30 minutes with my feet in a hot foot bath or in conductive socks and I run current through my feet and legs.  The good news, it seems to be working.  My feet no longer hurt like crazy in the mornings when I first get up and many days I don’t even notice the numbness, especially in my left foot.   They are still numb but not as bad as they were a few weeks ago.  I’ve even been able to walk more and do a bit of light running since starting this treatment so I’m hoping that I can reduce it even more or at least keep it at the level it is at now.

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